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Showing posts with label Laryngeal Dystonia. Show all posts
Showing posts with label Laryngeal Dystonia. Show all posts

Tuesday, 10 January 2012

A Question For Scots

The debate over Scottish Independence from the rest of the Union is turning into a bit of a political hot potato since the British Prime Minister opened it up fully on the Andrew Mar Show on Sunday last.

Now my feelings have already been made known on this subject through my previous post last October in Scottish Independence  when I nailed my colours to the mast in favour of maintaining the three hundred year old Union.

Everyone is laying into the debate and apparently the British Parliament through the current government are letting it be known that if Alex Salmond, the Scottish First Minister and the SNP, the ruling party in the devolved Scottish Parliament, ignores the law and tries to hold a referendum without the consent and agreement of the UK Parliament, they, the UK Parliament will go to court over the matter.

Something happened today to make me think about this again, something close to home that is.  You may recall that I have mentioned that Ishbel suffers from something called Laryngeal Dystonia This is a condition that affects the vocal chords of sufferers and makes it difficult for them to speak.  There is no cure but it can be moderated through continued visits to the hospital for specialist treatment every three or four months, resulting in a painful injection into the vocal chords.

Now a few years ago Ishbel told me that she met people when attending the clinic in London who were also waiting for their injections, and she told me that they came from all over the country as there is only one consultant in the country who specialises in this.  Well, today she came home from her treatment and told me that she met a very nice man who had come all the way from Scotland, with the NHS picking up his travel costs and hotel for an overnight stay......

Now there are a couple of points that this raises, one being why the hell is there only one clinic seemingly in the whole of the UNITED KINGDOM, that offers this treatment or which has the expertise for it, I am sure that there are probably reasonable answers to that question? But, the far more important question for Scots, is this.

If the SNP get their way and become the architects of the breakup of the Union, what happens to all the UK wide services that are currently offered, even under Devolved countries, such as sharing NHS facilities.  yes, I know that NHS services are currently different in the UK with free prescriptions, and care homes for the elderly in some parts, but not in others.  But, Scotland and Wales and Northern Ireland are funded by the UK exchequer from revenue raised, mainly through taxation.  Now taxation as we all know takes many forms from income tax to corporation tax to VAT, to fuel tax and energy surcharges and so on and on and on.

But I keep coming back to that same point, will there be enough people and jobs for an estranged Scotland to raise the taxes for the country to be self sufficient?  And, will people in Scotland, and eventually Wales and Northern Ireland, if they see Scotland achieving Independence, will they go the same way, and will those who suffer from these obscure illnesses suffer, because the English NHS will not fund treatment for them and will the NHS of those countries be able to provide the treatment that they need to maintain  a decent and comfortable lifestyle that is provided through the treatment they receive at the moment?

BBC News article


Thursday, 27 October 2011

Illness Makes You Worry, But Sometimes Laughter Really is the Best Medicine!

You will know, if you follow my posts, that I have had a couple of minor ailments and accidents over the years.  I apparently have a touch of Asthma.  Had a hearing test recently where allegedly I am suffering from the slightest of hearing loss in both ears, does that mean I am going deaf in stereo?

I recently had an Attack of the Poorlies when Ishbel my wife of 35 and a bit years was cleaning up after me.  I've been shot, I've been trapped down a pothole with torrential rain above leading to the pothole beginning to flood, I have had canoes spring leaks on me in the middle of the English Channel and the Middle of the Danube river ( read bloody big and wide and not really blue, yuk) oh, and I crushed  some vertebrae in a parachuting incident.  But hey, you venture out into the world and these things happen, don't they? 

But other than that, and being FAT I'm doing OK.

Now Ishbel on the other hand for the 35 and a bit years, plus (please don't hit me again if I get this wrong) the 3 or was it 4 years before we got married (oh Ish,  please don't hit me again), has been relatively fit and healthy, eats like a pig and never puts on any weight(what's that B word associated with women that I am not allowed to use), is never ill and never never misses a step through life until.....

Memory again, about 1993 or was it 94 she started to lose her voice ( I wasn't really pleased, honest I wasn't) anyway after a battery of tests, poking and prodding she was sent to see a specialist in London and she was diagnosed with something called  Laryngeal Dystonia Now this is a condition that affects the vocal cords and as far as I can tell the only treatment is a very painful one, or so Ishbel tells me (but what do women know about pain) and that is a large needle pushed directly into her vocal cords every couple of months with an injection, and anyway why is she whingeing, it's Botox and as son says, she is going to be the only wrinkly 100 year old with a neck as smooth as a baby's bum! 

But she never complains.  Then recently we were sitting at the table having a meal and I noticed that she was suddenly staring at the wall with a vacant expression on her face (some might say living with me that is normal - and I would just smack them on the teeth) and her right hand, or was it her left, see my memory is going too, was banging constantly on the plate!  I tried to to ask what was going on, what was the matter, but was getting absolutely no response, as suddenly as it had started it was gone. Ishbel says she was not aware of what I was talking about and went straight into continuing the sentence she was uttering, as if nothing had happened.  I was worried of course, but trying to get someone to go and see the doctor for something that they did not know was happening, was a hard task.

Fortunately, or not, as the case may be, it started to happen again, not a lot but intermittently and I would keep on at her.  But then it happened when the kids were over for a visit  and again Ishbel would say she had no idea what we were talking about, but agreed to go to the doctor.   

Long story short, it turns out she's a nutter, sorry she has a mild form of epilepsy, easily controlled with a pill, so all is well and she still never misses a step, she gallivants all over the south of England on her days off work, on train, tube, bus and shank's pony  visiting son, and daughters and grandchildren, then comes home and looks after me (not that I need looking after I am a MAN), and even with all of that we still have a laugh, well mainly me laughing at her as can be seen here......The Bionic Babe and that explains also why I am also laughing when I shouldn't be, remember ever so slight loss of hearing and I do miss some things that are said to me and what do I do, laugh like an idiot of course!

Keep well and look after yourselves 

PS: I should point out since MR Fat started to lose weight his wheezing is nowhere as bad as can be heard, you'll understand......