It has been so long now since posted any kind of a blog post and I felt that you at least needed something from me just to remind you that I haven't yet died......
I have been so exhausted over the last few months that I really haven't had the energy to do much, haven't even read any of the many books I still have in my kindle and so many of you wonderful authors are publishing great books and I am buying them and not finding the energy to push the on button on my reader, sheesh ......
Then I started the chemo again a week ago as the tumour seemed to be getting bigger and as usual the actual day of the gunk input was ok and it gave me renewed feeling of energy. ALthough having said that, I did get the right hump over the wait for treatment on the morning and unfairly started to take it out on the nursing and ward staff, but it's not their fault that they are understaffed and there are so many of us cancer stricken old farts hanging about It even seemed to 'cure' the gagging and choking effect I was prone to every time a morsel of food passed from my mouth into my gullet and that in itself was a relief. Four days into it though, last Friday I phoned the cancer specialist nurse as I wasn't feeling at all well, lethargic, nauseous, completely run down and in pain. I was in work, as usual, but ended up going home I just couldn't cope and it went down hill even more in the afternoon. I really thought I wouldn't make it to the end of the day, never felt so horrible before and the last time I was on the chemo I was bad and came off it but....
After speaking with Mel the cancer nurse and her reminding me about ALL of the meds ... shit I have so many of them I forgot what I had and for what symptons. There is one I call Dom Perignon, sounds like it but it's domperysomething .... anyways this is to counteract nausea. I also have tablets for constipation, have been taking them but then I ended up with diarrhea but hey, I have pills for that too. Anyway I didn't feel any better Friday and was still at deaths bed on Saturday but began to make a gradual improvement and continued to do so on Sunday but gawd was I pleased that Ishbel took the weekend off to look after me and of course Marie, Peter and the twins Holly and Charlie turned up to cheer me up. The only problem with that, having gone through life as a big tough scotsman with no outward show of emotion I find it difficult to not just start blubbering and just seeing the kids and the grandkids turning up is enough to turn me into tear streaked numpty.
Oh, I've posted this, as you can see under the Mr Fat page but I can report that he has left the building ...... which everyone but me is getting their knickers in a twist over. Yep, lost just over a stone and a half in the last three weeks and had a visit from a dietician while I was in getting gunked up last Monday. Infact they are so concerned he told me I have to start bulking up again... WTF says I. You do realize that for the first time in 15 years I have just seen John Thomas, if you think .......
And he says, yes very good but a lot of good John Thomas is going to be to you when you are dead. So, I want you to eat more;
Mashed potatoes with extra butter and grated cheese Double cream full fat yoghurt chocolate .....
Thick Gravy on meat dishes
Salt
Sugar
Full fat Milk
Shakes
Bread lashings of butter, toast
Now for some, that is an invitation to heaven I suppose, but for me, to be honest I'm finding I am full after a couple of bites, providing I can get it down that is.
And another thing why is that I feel good enough, well most days anyway to come into work, but at the weekends I feel shitty, when I should be chillin and relaxing and then there is the pee problem. What's that I hear you ask? Well let me tell you.
You know this chemo lark. They want you to get it into your system but perversely they also want it out again as soon as, I mean WTF again. Well you know me I never argue and alway, always do as I am told. So I have to drink gallons of water. Not a problem, I like water and so I drink gallons of the stuff anyway. Now tap water is good enough for me, not Ishbel though she has to have bottled water, just wait till I'm gone and she has to hump it back from the shops, we'll see how long that lasts then... anyway I digress
So, Take the chemo, drink gallons of water and flush the system. Fine and then that's where if there is a god he is messing with me again. like the feeling shit at weekends when I should be partying...
I'm drinking gallons of the stuff sat here at my desk in the office but do I need to keep running up and down the corridor to my private loo, yes well what can I say I deserve it. No, I am not running up and down to the loo although with the amount of water I'm taken I'm thinking there must be a problem there too. So off home I goes and of course when I get home, it's time to take the next bunch of chemo meds so I'm drinking buckets of water again and do I need to run up and down the hall to the loo, no I bloody don't! But what I do do, is get into frigging bed, close my eyes fall asleep for an hour and then the first of my three or four 5 frigging minute visits to the loo starts... I mean WTF is going on there and who is messing with my head and body sheesh, I just cannae win .........
So after a frightful weekend I have been back in the office today and felt much better, been run ragged with that bloody contractor again and not stopped, but it has been a good day so the sun is shining and all is rosy in the garden again. The chemo? I did say to Ishbel and the kids that I was going to phone the hospital and tell them to stuff it where the sun don't shine, but I'll give it some more time. YThe amelioration from the gagging has been good, but it's beginning to creep back again. so maybe the chemo has had an immediate effect but may not be doing all it might be... bastard, but I'll try and persevere and Jules is telling me to try radiotherapy, which wee Ollie the oncologist has also talked about, so I'll discuss that with her next week and by then it will soon be time to go back to Southend for another round of gunk input AND SOUTHEND HOSPITAL IF YOU ARE READING THIS DON'T HAVE ME FRIGGING HANGING AROUND COS I'M NOT NICE WHEN I'M GRUMPY.
Other news: None. Well apart from the fact that we have had astro turf done in the back garden and all the kids love it, including the neighbours kids and tip good quality astro turf seems much cheaper from the carpet shop, I know, I know, than from the garden centres in fact in south east Essex can't give enough Praise to MD Carpets for the job they did with ours.
Steve, Son in Law No 2 who lives down in woking came over and took me to hospital and Peter son in Law No 1 took time off from his work to come over at the weekend. I said it earlier in the week, life has been pretty good to me, pretty shit upbringing in terms of an abusive alcoholic father, but the hardest working caring mother as compensation. Ishbel who has put up with me for over 38 years, and I can see the pain in her eyes when I just want her to cuddle me, but not too tightly as it hurts, and three of the most loving, caring and hardest working kids, in Marie, Brian and Jennifer it would be any parents privilege to have helped bring into this world and from them we have been given 5 beautiful intelligent* loving grandchildren and then the added bonus of two of the most hard working sons in law that you are ever likely to meet in Peter and Steve who clearly love and adore their partners and their children and work all bloody hours to support them - guys take it easy once in a while will you - I love you all dearly and I want to be the first out the door
*intelligence and tattooed eyebrows I'm sure there is a contradiction there.........
So a few photos of what's been going on recently
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Fun in the garden before Astro turf |
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The new Astro turf |
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Ishbel planting pots but no pot for my pain! |
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Our first Indian Restaurant Lacey loved the popadoms! |
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Peter, Holly and Goalie Charlie K |
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Mollie loving the hot towel after the meal |
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Lacey Mae, Mollie and Shannon aks KatNip |
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Mollie teaching Lacey Mae |
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Grandmama and the darlings |
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Daddy Steve and cuddly Lacey Mae |
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MY JENNIFER with curls and..... |
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Charlie beginning to outgrow Holly |
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Daddy Peter also being shown how to lose at archery |
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MY MARIE |